Patients are one of the most critical parts of the clinical trials process, and recently that was demonstrated when Robert Wood Johnson Foundation gave a grant to Patients Like Me to set up an online portal that will allow patients to better communicate their disease and experiences to doctors to develop a more holistic assessment of how a treatment really goes for a patient. This will allow the results of a medicine to be successful based on what the manufacturer defines as the outcome but also success in the minds of the patients taking the medication. The data is also collected in an open forum, allowing the trends and themes presented by those who are in the trial to communicate the true feeling.
“We want to reverse the system so that the outcome becomes the measure of medicine. If we can develop a measurement system that is openly shared and centered on the patient, we will move our knowledge forward and bring medicine to a new and important level,” said Jamie Heywood, co-founder of PatientsLikeMe.
This one year partnership can provide a picture into the possibilities that collaboration with the patient population can bring to the outcomes of medication according to MedCity News. This coming April at Partnerships in Clinical Trials, we'll spend a whole day looking at what benefits patients involvement can have in clinical trials during the Patient Centered Clinical Trial Summit. During this summit, Elsie Mathews, Director Global Data Operations, of Bristol-Myers Squibb will be presenting Improve Patient Data Collection with Electronic Patient Reported Outcomes (ePRO) looking at other ways that patients can be involved in the clinical trials process. For more information on this session and the rest of the summit, download the agenda. If you'd like to join us in Orlando April 21-24, as a reader of this blog when you register to join us and mention code XP1800BLOG, you'll save 15% off the standard rate.
Do you feel that it's an uphill battle to have patients more involved in clinical trials? Will initiatives like this help to better develop medications?
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