Wednesday, June 26, 2013

What's the mindset of most Americans towards clinical trials?

For years now, clinical trails have been facing the difficult task of finding enough people to participate in their clinical trials.  A new survey from Research America, the Association of Clinical Research Organizations, the Clinical Research Forum, the Friends of the National Library of Medicine and the Clinical Trials Transformation Initiative takes a look at how the American public feels about participating in clinical trials and who is most likely to persuade the public to start participating.

At Pharmalot, they look at a survey of 1006 people, 72% said they'd be willing to participate in a clinical trial.  But many of those who are willing never hear anything from their physicians about the opportunities to participate.    In fact, the majority of individuals hear about the clinical trails being conducted through media including the radio, print ads and the internet. Many of those surveyed believe that clinical trials are still to risky to participate in while others worry about adverse health risk and not receiving enough compensation for their contributions to the trials.

But on the other side, many say they are willing to participate in the clinical trials for these reasons: for researchers to understand diseases and find treatments,  to advance medical research and to improve patient care.  With this in mind, the survey also found out that the primary concerns for those willing to participate in clinical trials are interested in the reputation of the company conducting the trials and whether or not they'll be reimbursed for any complications that come as a result of participating in the trial.

What the article at Pharmalot doesn't mention is how patient organizations can help educate patients and encourage them to join clinical trials.  Could this become a driving factor for patient recruitment in clinical trials?  At the Clinical Collaboration Congress this fall, Andrew Jablonski, CEO of the Short Bowel Syndrome Foundation will join us to discuss how a partnership was formed between the Short Bowel Syndrome Foundation and NPS Pharmaceuticals and how they've used the partnership to unite and educate the small patient population in the United States about clinical trials.  For more information about this presentation and the rest of the program,download the agenda.  If you'd like to join us September 25-27 in Boston, as a reader of this blog when you register to join us and mention code XP1825BLOG, you'll save 15% off the standard rate.

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