Monday, November 4, 2013

The value of partnering with patients for clinical trials

Jack Whelan is a Cancer Warrior & Survivor, ePatient, Clinical Trial Participant and will also be participating in this year's Partnerships in Clinical Trials conference on the Pharma/Patient Collaboration panel.  In a recent issue of Cancer Today, he shared his story about his diagnosis and treatment of Waldenstrom macroglobulinemia.  With this in mind, Whelan and his family went to the internet for research to learn more about this slow growing, incurable disease.  He transferred doctors to a oncology specialist and turned to Phase II clinical trials to find a treatment his disease would respond to.  His successful treatment came in the fourth drug - panobinostat.  This drug blocks the enzymes needed for cancer cells to grow and divide.

He also reached out and started networking with other cancer patients.  He has joined the Patient-Family Advisory Council at Dana-Farber  and is the support group leader in the New England area for the International Waldenstrom Macroglobulinemia Foundation among other foundations.  He's also responsible for working with law makers to pass a bill in January 2013 in Massachusetts to require insurance companies tho cover the same level of oral cancer medications as they would chemotherapy.

Read more about Jack's story at Cancer Today.

Would you like to hear more about Jack's story?  He'll be joining the panel Pharma/Patient Collaboration Panel - Partnering with Patients: What Do You Need From Each Other? this spring at Partnerships in Clinical Trials.  We're currently putting the final touches on the 2014 program.  To be notified when it becomes available, sign up for email updates.  Would you like to join us March 30-April 2, 2014?  As a reader of this blog, when you register to join us and mention priority code XP1900BLOG, you're eligible to save $100 off the current rate.




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